Daria Georgieva, 4 years old

Daria Georgieva, 4 years old

/ Categories: The Children

At the age of 2 months, Daria was found to lack stable visual function and head control. She was diagnosed with background retinopathy, a condition in which light does not reach the retina because of bleeding from the retinal blood vessels. In addition, she was diagnosed with Canavan disease, a rare inherited degenerative disease that progressively damages the ability of nerve cells (neurons) in the brain to communicate. Infants with this condition typically do not develop motor skills such as the ability to control their head movements, sit unsupported and roll over, and have poor muscle tone and an abnormally large head (macrocephaly). This can lead to eating and swallowing difficulties. It can also cause seizures, blindness and sleep problems. Children born with the neonatal form of Canavan disease (like Daria) rarely survive into adolescence. The girl is severely disabled, lacks motor skills, head control, cannot see, speak or understand human speech. PROtegni Raka covered the cost of purchasing a verticalizer suitable for her needs.